Table 3 Studies characteristics
From: Barriers for access and utilization of dementia care services in Europe: a systematic review
First Author, Year, (cit.) | Nation of study | Study Design | Methods | Population | Sample | Setting | Identified Barriers | Quality score |
|---|---|---|---|---|---|---|---|---|
Dickinson C. et al., 2013 [39] | UK | Qualitative study | Interview | People living with dementia and Caregivers | 46 (29 Caregiver; 17 people living with dementia) | - Home-Based Care | - Informational and educational | 100% |
Górska S. et al., 2013 [40] | UK | Qualitative study | Interview | People living with dementia and Caregivers | 31 (19 Caregiver; 12 people living with dementia) | - Home-Based Care - Community-Based Care - Residential or Long-Term Care Facilities | - Organisational - Informational and educational | 100% |
Jutlla K. [41], 2014 | UK | Qualitative study | Interview | Caregivers | 12 | - Home-Based Care | - Cultural and stigma-related | 100% |
Stephan A. et al., 2015 [42] | Germany | Qualitative study | Focus Group | HCWs and Caregivers | 30 (13 HCWs; 17 Caregivers) | - Home-Based Care - Community-Based Care - Residential or Long-Term Care Facilities | - Organisational - Cultural and stigma-related | 100% |
Mariani E. et al., 2017 [43] | Italy, the Netherlands | Qualitative study | Focus Group | HCWs | 19 | - Residential or Long-Term Care Facilities | - Organisational - Financial | 100% |
Kupeli N. et al., 2018 [44] | UK | Qualitative study | Interview | HCWs | 14 | - Home-Based Care | - Organisational - Informational and educational - Logistical | 100% |
Midtbust M. et al., 2018 [45] | Norway | Qualitative study | Focus Group / Interview | HCWs | 20 | - Residential or Long-Term Care Facilities | - Organisational | 100% |
Stephan A. et al., 2018 [46] | Germany, Ireland, Italy, the Netherlands, Norway, Portugal, Sweden and the UK | Qualitative study | Focus Group | People living with dementia and HCWs and Caregivers | 261 (114 HCWs; 96 Caregiver; 51 people living with dementia) | - Home-Based Care - Respite Care | - Organisational | 100% |
Burgon C. et al., 2019. [47] | UK | Qualitative study | Interview | HCWs | 19 | - Clinical or Hospital-Based Care | - Organisational - Informational and educational | 100% |
Kerpershoek L. et al., 2019 [48] | Netherlands, Germany, the UK, Ireland, Sweden, Norway, Portugal, Italy | Qualitative study | Interview | People living with dementia and Caregivers | 85 | - Home-Based Care - Community-Based Care | - Organisational, - Informational and educational - Cultural and stigma-related - Financial - Logistical | 100% |
Oliveira D. et al., 2019 [49] | UK | Qualitative study | Focus Group / Interview | HCWs and Caregivers | 73 (46 HCWs; 27 Caregiver) | - Home-Based Care - Respite care - Clinical or Hospital-Based Care | - Organisational - Informational and educational - Financial - Logistical | 100% |
Czapka E. et al., 2020 [50] | Norway | Qualitative study | Interview | HCWs and caregivers | 14 (6 HCWs, 8 caregivers) | - Home-Based Care | - Cultural and stigma-related | 100% |
Minaya-Freire A. et al., 2020 [51] | Spain | Qualitative study | Survey / Focus group | HCWs | 10 | - Clinical or Hospital-Based Care | - Organisational, - Informational and educational - Logistical | 100% |
Mitchell G. et al., 2020 [52] | UK | Qualitative study | Focus Group / Interview | People living with dementia | 20 | - Community-Based Care | - Cultural and stigma-related | 100% |
Nielsen T. et al., 2020 [53] | Denmark | Quantitave study | Survey | HCWs | 41 | - Home-Based Care | - Cultural and stigma-related | 100% |
Hossain MZ et al., 2020 [54] | UK | Qualitative study | Focus Group / Interview | Caregivers | 27 | - Home-Based Care | - Cultural and stigma-related, educational | 100% |
Giebel C et al., 2020 [55] | UK | Qualitative study | Interview | People living with dementia and Caregivers | 342 (285 Caregiver; 61 PWLD) | - Home-Based Care | - Logistical | 100% |
Monsees J et al., 2020 [56] | Germany | Qualitative study | Interview | Caregivers | 8 | - Home-Based Care | - Educational | 100% |
Ryan L et al., 2021 [57] | Ireland | Qualitative study | Interview | HCWs and Caregivers | 34 (14 HCWs; 20 Caregiver) | - Community-Based Care | - Cultural and stigma-related | 100% |
Giebel C. et al., 2021 [58] | UK, the Netherlands | Mixed methods study | Survey / Interview | HCWs and Caregivers | 116 (13 HCWs; 103 Caregiver) | - Home-Based Care - Respite Care | - Informational and educational - Cultural and stigma-related | 30% |
Giebel C. et al., 2021 [59] | UK | Qualitative study | Interview | HCWs and Caregivers | 21 (14 Caregiver; 7 people living with dementia) | - Home-Based Care - Respite Care | - Organisational | 100% |
Giebel C. et al., 2021 [60] | UK | Quantitave study | Survey | People living with dementia and Caregivers | 13 | - Home-Based Care | - Organisational | 100% |
Hirt J. et al., 2021 [61] | Switzerland, Liechtenstein | Qualitative study | Interview | HCWs | 12 | - Residential or Long-Term Care Facilities | - Organisational | 100% |
Kulmala J. et al., 2021 [62] | Finland | Qualitative study | Focus Group / Interview | HCWs | 27 | - Primary Care - Public Health Settings | - Organisational - Informational and educational | 100% |
Rusowicz J. et al., 2021 [63] | Poland | Quantitative study | Survey | Caregivers | 85 | - Home-Based Care | - Organisational | 30% |
Sriram V. et al., 2021 [64] | UK | Qualitative study | Interview | Caregivers | 23 | - Home-Based Care | - Logistical | 100% |
Wheatley A. et al., 2021 [65] | UK | Qualitative study | Focus Group / Interview | HCWs, people living with dementia and Caregivers | 177 (129 HCWs; 31 Caregiver; 17 people living with dementia) | - Clinical or Hospital-Based Care | - Organisational | 100% |
Balsinha C. et al., 2022 [66] | Portugal | Qualitative study | Focus Group / Interview | HCWs, people living with dementia and Caregivers | 40 (22 HCWs; 10 Caregiver; 8 people living with dementia) | - Primary Care | - Organisational - Informational and educational - Cultural and stigma-related | 100% |
Dibao-Dina C. et al., 2022 [67] | Bosnia, Croatia, Georgia, Greece, France, Hungary, Ireland, Israel, Italy, Latvia, Poland, Portugal, Romania, Switzerland, the UK, Ukraine | Mixed methods study | Survey | HCWs | 583 | - Home-Based Care - Community-Based Care - Residential or Long-Term Care Facilities | - Financial | 40% |