Illustrative quotes from caregivers (N = 20) | Illustrative quotes from care team members (N = 12) |
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“When I went up, the room was really nice and it was huge, I couldn’t believe how big his room was and I just I felt safe knowing that he was there. I felt good about his safety.” (Sibling, Caregiver 13) “They [care team] would advise me that you know, “You don’t have to stay here all day, you could go home and take a nap if you want to come back, make sure that you’re eating,” you know they would always make sure to tell me take care of yourself because you’re going to have to be taking care of him later, so you’ve got to be up to this, you know you’ve got to be up for this but yeah, they were always very kind to me…I think it was very helpful and it would, when I would go home I always felt very comfortable leaving him.” (Significant other, Caregiver 21) | One of few factor quotes:a “The cafeteria being able to get hot plate…those are little minor comforts that I’ve seen and feel that have helped the family members get through those, those moments… for no other reason just for a different area of the hospital for them to be able to escape to for a moment and gather themselves.” (Non-clinical staff, Team member 05) One of few factor quotes: “Many times the family member will come in and they’ll watch the movie with [the patient] and just be there with them…I feel that that technology [TV, audiobook] there has been helpful for them to be able to get through whatever’s going on, get their mind off of the situation for those brief moments.” (Non-clinical staff, Team member 05) |