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Table 2 Four dimensions and selected aspects for exploring the potential clinical utility of the IPOS-Dem (CH) in acute and community care settings

From: Empowering informal caregivers and nurses to take a person-centred view: adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings

Dimensions (Smart [23])

Selected aspects for the focus group discussions

Results: corresponding themes

Appropriate

• Impact of IPOS-Dem (CH) on existing treatment processes (Is the IPOS-Dem effective?)

• Importance of clinical decision-making when using the IPOS-Dem (CH) (Is it relevant?)

• IPOS-Dem (CH) enables better support of the person with dementia

• Clinical decisions are based on symptoms important to people with dementia and their informal caregivers (to fine-tune care, particularly for informal caregivers)

• Guidelines needed for the clinical interpretation of scores (nurses)

• Improved awareness of change in health status and disease severity (informal caregivers)

Accessible

• Economic considerations, e.g., procurement including availability of technologies, quality of material, availability of training and support

• IPOS-Dem (CH) to be assessed, saved and documented using an online system (community nurses)

• Being able to access the IPOS-Dem symptom profile/changes in the symptom profile on a computer (community nurses)

Practicable

• Functionality within work context

• Suitability (e.g., is it helpful in everyday situations)

• Practitioner skills and capabilities (e.g., professional qualifications)

• IPOS-Dem (CH) to support communication and teamwork (acute care nurses)

• IPOS-Dem (CH) captures observations from nurses with different qualification levels, therefore valuing all members of the care team equally (all settings)

• IPOS-Dem (CH) provides an overview of the priorities of care, therefore helps with communication to the community care provider (informal caregivers)

• IPOS-Dem (CH) may support symptom review (community nurses)

Acceptable

• Possible moral objections when administering the IPOS-Dem (CH) (e.g., beneficial to the person with dementia and informal caregivers)

• Clarification of expectations regarding service delivery and person with dementia

• IPOS-Dem (CH) giving an objective account of symptoms and change in health status (informal caregivers, community nurses)

• Completing an IPOS-Dem (CH) in the acute setting can be a challenge if one does not know the person with dementia well (acute care nurses)